Spare Change
Nedra is a social marketing consultant, author and speaker who works with nonprofits and government agencies for positive health and social change using social media, transmedia storytelling and entertainment education approaches at Weinreich Communications.
Email me
This week on the HHS Pandemic Flu Leadership Blog, I indulge my rich fantasy life and crown myself the Queen of Pandemic Communications. In my final post for that blog, I lay out what my ideal pandemic flu preparedness campaign would look like.



We have also launched our first “blog summit” on pandemic preparedness. Many of you have participated in the summit — at blog.pandemicflu.gov. If you haven’t, there’s still time. It will run for another two weeks. I have greatly enjoyed my interactions with you and thousands of other engaged individuals. I am sure you will find the open dialogue on the site very useful.Stephanie Marshall, the Director of Communications at HHS, said:
And Admiral John Ogwunobi, who incurred the most wrath for his blog posts, extended an olive leaf during his closing remarks:Our online research also revealed that there is an online community of “flubies” who are informed and already preparing. And they’re on the Pandemic Flu Leadership Blog.
Because one of the main criticisms by the commenters on the HHS blog had been that they didn't think that HHS was listening, having a spotlight shown on the flubie community, particularly with Greg Dworkin as their able spokesman (who wasAs a noteworthy end to the Pandemic Flu Leadership Forum, Dr. Agwunobi invited others to make closing remarks. (“My handlers are shaking their heads and telling me not to do this – but I’m gonna do it!”) He encouraged Dr. Greg Dworkin of Flu Wiki to share his thoughts. The two have recently become acquainted as contributors on the HHS blog.
– our blog community will appreciate this -
Dr. Dworkin: One of the things we’ve learned today, over the past three weeks, and will continue to learn, is that there are a lot of potential recruits for this effort. . . A lot of people who are already engaged and feel strongly about this want to help.”
Dr. Agwunobi: I didn’t realize until I became an avid reader of the HHS blog that there is an army of people who are already preparing and want to help further this goal of preparedness. (I also learned you have to be completely open and honest and forthcoming in that world or they won’t treat you very nicely!)
So, while there are still many detractors who feel that whatever HHS does is too little, too late, it seems that communication channels have at least been opened. HHS has developed a healthy respect for the knowledge and engagement of the flubies, who in turn are feeling like their efforts are finally being validated. Whether HHS does the right thing and works with this active community as a partner in building the necessary grassroots movement has yet to be seen, but this is a hopeful beginning.While I know many were expecting more out of all of this, I think we maybe got more than we realize. We’ve got a clear clarion call from the Secretary of HHS, to go forth into our communities and spread the pandemic awareness message. We’ve been validated, at least unofficially, as being partners in the national effort to prepare for a pandemic. And our voices, for the first time, have been heard on this issue.
I suspect we may have surprised a few folks with our knowledge, our passion, and our dedication.
The reality is; no one is going to get everything they want out of this leadership summit. Many questions will go unanswered, many policy decisions will be withheld pending consultation and review, and concrete results may yet be months away. This experiment, like all experiments, was conducted without knowing in advance what the end result would be.
The HHS is mixing ingredients, looking for a catalyst that will spark a reaction among previously inert components. Praying for cold fusion in a test tube. We can be that catalyst. Regardless of how we feel about what has, or hasn’t been done to date by government agencies, we can take the lead in our communities and promote pandemic awareness. If enough of us do that, we can start a groundswell around the nation, and hopefully show the rest of the world how it is done.
Despite some early hitches in the process, and a miscommunication or two along the way, I’d have to say the Leadership Summit has advanced the ball down the field a bit. We have recruited a few more community leaders into the fold, and we have engaged in a open, and often spirited conversation with a Federal agency.



Growing up in Los Angeles, we got used to going through droughts and being careful about our water consumption. When it was really bad, we had to turn off the shower water while lathering up, put bricks in the toilet tank to use less water, and endure the terrible inconvenience of restaurants not bringing a glass of water unless requested. Record low rainfall (the same this year as the annual equivalent of Death Valley's) and low snowpack on the mountains from which we get our water, combined with predicted high temperatures this summer, means that we're gearing up again for drought measures.
Dear [name],What kid (or adult, for that matter) wouldn't be beaming after reading that letter? Who wouldn't be pulling out the ruler to see how long it might be until her hair grew enough to send in another donation?
Yes, yes, I mean you. You, who faithfully grew your hair for a long time and then cut it short (and sometimes, even shorter than you would have liked), just so your hair would meet the criteria of Zichron Menachem, just so you could donate it to sick children. You just wanted to aid children that were in a bad way.
When their hair started to fall out, in a bad way.
That is the first actual sign which proves to them that they are sick -- with the terrible disease known as cancer, and breaks them emotionally.
And not only that, but when they suddenly see large faces looking back at them in the mirror. Too large. Missing too much. And at that critical moment, what is missing has a tremendous impact.
That is the point where they meet your hair. Your noble act returns their faces to them. Their self respect. Their self-confidence that everything "will be ok" and "I'm still myself despite everything."
Your valiance is noble!
I want to thank you for your partnership with Zichron Menachem -- for helping make a very difficult time, a bit easier. And I want you to know that how successful your effort is, every time I see a bashful smile from those mirrors, trying to love what they see. And they succeed.
There are other ways to contribute to Zichron Menachem. Visit our internet site: zichron.org
Sincerely,
Efrat Luxenberg
Public Relations
efrat@zichron.org
Please let me know if you work with any non profits who might be interested in getting some amazing exposure. Feel free to forward to colleagues. NOTE: this is not a “Pay for the production costs scam”…it’s for real.For more information, contact Melissa Havard, Melissa@casablancaconsulting.com.
Profiles in Caring (501c3) is a half hour professionally produced television program highlighting amazing non profits who make profound differences in the lives of others. Their focus is on the mid to small non profit organization, that make great impact with minimum staff and dollars. The stories are mini documentaries, with a personal “behind the scenes” emphasis that reveals the essence of the organization and the people involved.
THEY ARE REQUESTING SUBMISSIONS FOR FALL PROGRAMMING. It's a simple application process online, period. I’m encouraging my friends and colleagues to help get the word out! They are interested in US and International organizations.
PIC currently broadcasts nationally and internationally on the following outlets:
American Life TV
The Altitude Network
America One TV
Voice of America
Comcast on Demand
KJZZ TV Salt Lake City
KHIZ TV Los Angeles
WHBG TV Harrisburg
The STARFISH Network (dish TV)
There are several benefits to filling out an application for submission. If selected,
(1) Profiles in Caring pays ALL production costs. There may be minor travel (coach) expense for cameraman’s travel , but if that presents a problem, sometimes even this minimal charge is covered. *PIC is structured/funded so that the service they provide is producing the program with little or no cost to organization selected. No bait and switch. This is a really great, cool organization.
(2) The programming can lead to increased visibility and donations.
(3) The non profit can keep the 30 minute documentary and use without restriction however they want (fundraising, b roll for news /media, video streaming on web, cross promotion and branding, board presentations)
(4) PIC simply asks for a link on website site, either prior to or when video is aired.
(5) In addition to producing the video, there is an Ambassadors in Caring 10K grant available for qualified and selected applicants. Profiles awards (4) of these each year.
Profiles in Caring is a non-religious, not-for-profit enterprise, an initiative of DreamWeaver Medical Foundation, a 501(3)(c) organization.



